lymphatic malformation | Attack the Cure

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You Are Not Alone

Four Leaf Clover (by Sadie)

How Do You Advocate for a Cause?

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You Are Not Alone

What a special day and incredible experience. Thank you to KPRC 2 and Houston Life, but especially Joe Sam!

How Do You Advocate for a Cause?

We all have our favorite sports teams and bands. We wear their shirts and jerseys, rock the stickers on our cars and talk to people about...

Coronavirus / COVID-19, Quarantine and Lymphatic Malformation

It's been extremely distracting lately, while at the same time having way too much time on my hands to write anything. But I wanted to ma...

Taking my Voice to Congress in 200 Words or Less

I just posted my story to the Lymphatic Education & Research Network as they will be putting together a web page that will be Voices to C...

Otolaryngologist (huh?)...aka My Doctor for my Lymphatic Malformation

Next to my family, this man is probably the most important person in my life...Dr. Joseph L. Edmonds, Jr. Or, as we call him, "Dr. Joe". ...

The Fundraiser that was a $5k HIT (A-Thon)!

(We are SO doing this again) In the summer of 2015, we decided to do a fundraiser for the Lymphatic Education & Research Network and it w...

Hey Athletes, Play for a Cause...At ANY Level!

One of the main goals on my podcast is to interview professional athletes about their charity work, foundations, and how they give back t...

Lymphatic Malformation Doesn't Control Me

My parents have talked to me a lot about how my lymphatic malformation isn't who I am. It is something I have. And something I have to de...

Lymphatic Malformation Surgery Chronicles - Tongue Reduction pt. 3

Surgery Day There is no doubt I was pretty nervous on the day of my surgery but I know it was for the best. My doctor, Dr. Joseph Edmonds...

Lymphatic Malformation Surgery Chronicles - Tongue Reduction pt. 2

My dad asked me if there was one thing I could do the day before my surgery, what would it be? He said it could be anything… Almost. I to...

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