BIOGRAPHY

Zachary Berger is 17 years old from Conroe, Texas. He is a
junior at The Woodlands College Park High School. He serves
on the Community Service Committee as an officer of Student
Council and does statistics for the varsity Cavaliers
baseball team.

 

Zachary suffers from a rare disease by the name of lymphatic
malformation. Lymphatic malformations are rare, non-malignant masses
consisting of fluid-filled channels or spaces thought to be caused by the abnormal development of the lymphatic system. These malformations are usually apparent at birth or by two years of age and Zachary’s were diagnosed at birth. There is no cure and many unknowns about proper treatment with too many misdiagnoses. 

Texas Youth Ambassador for the Lymphatic Education & Research Network
In 2015, at the age of 11, Zachary became the Texas Youth Ambassador for the Lymphatic Education & Research Network (LE&RN), a global non-profit organization that is headquartered in New York City. Around that same time, he organized his first fundraiser and awareness campaign in the form of a baseball hit-a-thon, raising $5,000 for LE&RN. Since that time, he has started a podcast, sold t-shirts, had an ice cream night, did a 10-hour live charity video game stream on Twitch and organized other restaurant charity days.

 

Zac’s Attack for a Cure
In 2018, Zachary and his family started Zac’s Attack for a Cure as a way to amplify his voice and “Attack the Cure for Lymphatic Malformation”. All donations to Zac’s Attack for a Cure are either donated to LE&RN or put back into t-shirts, stickers and other supplies, which are sold to raise money for research.

 

The mission for Zac’s Attack for a Cure is to spread our message of hope and compassion while raising awareness and funds for research for Lymphatic Malformation. We are taking the offensive and believe that a single action can make a difference.

 

Zachary has also attended, participated in and even spoke at LE&RN walks in Plano, TX. He was invited to the Washington D.C. walk, where he was going to be the keynote speaker on the steps of the Lincoln Memorial, but due to COVID-19, the event was cancelled.  He followed that up by sharing his story with Congress electronically and spoke to Congressman Kevin Brady of the 8th Congressional District of Texas on the phone to urge him to help create a National Commission on Lymphatic diseases and include “lymphatic diseases” as a category eligible for study in the Department of Defense (DOD) Peer-Reviewed Medical Research Program.

 

Rare Disease Legislative Advocates
Zachary is a member of the Young Adult Representatives of Rare Disease Legislative Advocates (RDLA). In October of 2020 he was named as a finalist for a 2020 RareVoice Award. The nomination is in the category of Federal or State Advocacy: Teen, for going above and beyond to impact policy change for the rare disease community. Winners will be announced in December of 2020. 

APPEARANCES & ADVOCATING

Zachary has also attended, participated in and spoke at LE&RN walks in Plano, TX. He was invited to the Washington D.C. walk, where he was going to be the keynote speaker on the steps of the Lincoln Memorial, but due to COVID-19, the event was cancelled. He followed that up by sharing his story with Congress electronically and spoke to Congressman Kevin Brady of the 8th Congressional District of Texas on the phone to urge him to help create a National Commission on Lymphatic diseases and include “lymphatic diseases” as a category eligible for study in the Department of Defense (DOD) Peer-Reviewed Medical Research Program.

Through his efforts, Zachary has been fortunate enough to be interviewed and featured in the following places:

 

Zachary’s public speaking engagements have included:

Zachary has raised thousands of dollars for LE&RN and been a friend through social media and a voice for all those who suffer from lymphatic malformation.

Zachary loves math and baseball and hopes to study sports management, journalism and statistics in college to pursue a job in major league baseball as part of a front office. At home, Zachary’s tight-knit family includes his 11-year-old sister, Sadie and his mom and dad, Holly and Marc, along with a labradoodle named Bailey.

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©2019 by Zac's Attack for a Cure - Supporting the Lymphatic Education & Research Network https://lymphaticnetwork.org/