Our Recent Posts



Lymphatic Malformation Surgery Chronicles - Tongue Reduction pt. 2

My dad asked me if there was one thing I could do the day before my surgery, what would it be? He said it could be anything… Almost. I told him that I wanted to go to an Astros game. By the way, this was before they got good! So, as with both of my parents, they are so good to me, my dad took me to the Astros game on July 2nd, 2014. I have been a fan of their catcher at the time, Jason Castro, and my dad surprised me with his jersey before the game so I wore that! As with any game that we had gone to in the past, I really like to get there early and see if I can get a ball during batting practice or get a signature from a player. So we were there early and I was standing on the Astros si

My Struggle for Relief

These days when I am struggling for some relief there’s not a lot I can do. There are usually two things I do; the first is to take one Advil and one extra strength Tylenol and the other is to eat a popsicle or crushed ice. Both of these things are temporary relief, but it's all I can do. The popsicle or crushed ice is the immediate relief and it feels really good on my tongue. There are usually bumps underneath my tongue around the side and this wicked line along the side that becomes very prominent and hard. Most of the time the pain is external, meaning that it is physically on the surface of my tongue, which I am sure most of you know when you do something like bite your tongue, it hur

Lymphatic Malformation Surgery Chronicles - Tongue Reduction pt. 1

I had other surgeries between the laser job at 3 years old and now, like the time I had 7 teeth removed including my wisdom teeth, to again, give me more room in my mouth and avoid future dental complications. It was an outpatient surgery, but I was in the hospital and I was under anesthesia. This is probably going to be a multi-part post because there was so much to it. Not just the surgery, but decision to do it, the events leading up to it and the surgery itself and recovery. The decision to do it My parents, Dr. Edmonds and me (I guess), decided to go ahead and schedule the surgery that Dr. Joe warned my parents about when I was a baby. He told them that he always wanted to avoid cutting


My parents tell me that leading up to the surgery I had when I was 3 years old, I was experiencing very frequent tongue swellings with a lot of bumps (cysts) and lesions. My ENT, Dr. Joseph Edmonds, or as we like to call him, Dr. Joe, recommended we do a laser treatment on the surface of my tongue, all the way around. He also recommended that we remove my tonsils and adenoids at the same time, which would give me 20% more room in my mouth. The recommendation came with a warning and that was that the recovery time would be long and tough because anytime you do anything to the tongue, it reacts BIG TIME! Up until this point, there had been nothing done to my tongue. All the sclerotherapy I had

Lymphatic Malformation Surgery Chronicles - My First Year of Life!

When I was 16 days old, I had my first surgery. My parents tell me that I was at my 2-week check up with my pediatrician and she told us we had to down to Texas Children's Hospital in the Medical Center immediately and that she would be scheduling a surgery with a pediatric surgeon THAT day. What had happened was that one of the cysts in my neck had bled into itself. I guess that's bad. It sounds bad. It needed to be drained. They tell me it was a very long day of waiting - and they make sure to tell me that I couldn't have any milk or anything since I was going in for surgery. I finally had the surgery at like 9pm, after waiting all day. They told me it was like a 10 minute procedure, where

  • Facebook
  • Twitter
  • Instagram
  • YouTube

©2019 by Zac's Attack for a Cure - Supporting the Lymphatic Education & Research Network https://lymphaticnetwork.org/